I just typed a long post and then accidentally deleted it and it was gone forever, so that was cool. Not. Anyway...
I was diagnosed with narcolepsy without cataplexy two years ago. Most people think of narcolepsy as a joke, as it is portrayed in movies, but it's not funny to people who have it.
After suffering from excessive daytime exhaustion for years I had a sleep study which revealed that I fall almost immediately into REM sleep when I fall asleep and contrary to popular belief, more REM sleep is NOT better when you don't get enough "deep" or "slow wave" sleep. I refused to accept this diagnosis because the prognosis is terrible. "No cure" and "no known cause" but suspected to be autoimmune related and brought on by a virus or a trauma, generally in ages 15-20 is when it begins to manifest.
I stopped taking adderall 4 months ago, and the sleeping pills I was on, because I am trying to become healthy, but I have little energy or motivation to even shower, let alone stick to the raw til 4 diet (as much as I want and intend to, getting to the store is even a large task for me right now). This is not withdrawal. This is something wrong with my body or brain that was there before adderall ever came around.
My question is: has anyone cured narcolepsy with the raw til 4 or HCRV lifestyle? I so want this to be the solution but everything I read screams against it. They claim that a ketogenic diet (basically paleo) has helped narcolepsy patients. Nothing seems to help me. I eat a generally healthy vegetarian diet. I'm trying to find the motivation and inspiration to stick with raw til 4 but it's very hard with my poor sleep and extremely low energy levels. I know it's a shot in the dark to find someone with narcolepsy on here, but please...someone, anyone...inspiration please?!???
I have not heard of anyone with narcolepsy on here or within the raw food movement. But People with auto immune dis-ease have great results with 100% raw, not sure about low fat cooked but of course this is the second best diet to eat next to 100% raw. Dairy wreaks havoc on our bodies and grains can be very detrimental to many. So with such a serious health issue I would do whatever I could to follow 100% raw.
Sorry about your post being lost! I hate it when that happens! Maybe try writing a bit at a time in an email and saving it so you can share more details with us. Keeping it in a blog post is a handy way to refer people to it when posting other topics in the future.