30 Bananas a Day!

I just typed a long post and then accidentally deleted it and it was gone forever, so that was cool. Not. Anyway...

I was diagnosed with narcolepsy without cataplexy two years ago. Most people think of narcolepsy as a joke, as it is portrayed in movies, but it's not funny to people who have it.

After suffering from excessive daytime exhaustion for years I had a sleep study which revealed that I fall almost immediately into REM sleep when I fall asleep and contrary to popular belief, more REM sleep is NOT better when you don't get enough "deep" or "slow wave" sleep. I refused to accept this diagnosis because the prognosis is terrible. "No cure" and "no known cause" but suspected to be autoimmune related and brought on by a virus or a trauma, generally in ages 15-20 is when it begins to manifest.

I stopped taking adderall 4 months ago, and the sleeping pills I was on, because I am trying to become healthy, but I have little energy or motivation to even shower, let alone stick to the raw til 4 diet (as much as I want and intend to, getting to the store is even a large task for me right now). This is not withdrawal. This is something wrong with my body or brain that was there before adderall ever came around.

My question is: has anyone cured narcolepsy with the raw til 4 or HCRV lifestyle? I so want this to be the solution but everything I read screams against it. They claim that a ketogenic diet (basically paleo) has helped narcolepsy patients. Nothing seems to help me. I eat a generally healthy vegetarian diet. I'm trying to find the motivation and inspiration to stick with raw til 4 but it's very hard with my poor sleep and extremely low energy levels. I know it's a shot in the dark to find someone with narcolepsy on here, but please...someone, anyone...inspiration please?!???

Views: 566

Reply to This

Replies to This Discussion

I have not heard of anyone with narcolepsy  on here or within the raw food movement. But People with auto immune dis-ease have great results with 100% raw, not sure about low fat cooked but of course this is the second best diet to eat next to 100% raw.  Dairy wreaks havoc on our bodies and grains can be very detrimental to many.  So with such a serious health issue I would do whatever I could to follow 100% raw.

Sorry about your post being lost!  I hate it when that happens!  Maybe try writing a bit at a time in an email and saving it so you can share more details with us.  Keeping it in a blog post is a handy way to refer people to it when posting other topics in the future.

RSS

About

TheBananaGirl created this Ning Network.

30BaD Search

Latest Activity

Peter posted a status
"Could help.that should read."
6 hours ago
Peter posted a status
"I can't remember how to post a photo if anyone couldchelp?tia"
6 hours ago
Cassie K added a discussion to the group Self Sufficiency using Permaculture
Sunday
Cassie K commented on Jay Don't Cook's group Self Sufficiency using Permaculture
Sunday
Cassie K commented on Jay Don't Cook's group Self Sufficiency using Permaculture
Sunday
Laura Kuchy commented on Tiff Hawkins's blog post Too Exciting
Friday
Profile IconLaura Kuchy and Peter H joined 30 Bananas a Day!
Wednesday
Raw Mormon Mommy posted a status
"How do I edit my profile?"
May 20
OrganicMark posted a status
"OBAMAGATE 1: CRIME OF THE CENTURY #evolution #awakening #peace #truth #love #light https://j.mp/2WVPNbe"
May 19
Profile IconSuzanne, SunBeaming, Rhonda Miga and 1 more joined 30 Bananas a Day!
May 17
OrganicMark posted a status
"PlanDemic - Banned Documentary #evolution #awakening #peace #truth #love #light https://bit.ly/2xJvrK0"
May 15
OrganicMark posted a status
"What They Don’t Want You To Know About Covid-19. Dropping Bombs (Ep 264) Dr. Rashid Buttar #peace #truth #love #light https://j.mp/2T4hGwE"
May 15
OrganicMark posted a status
"COVID-19 documentary by Janet Ossebaard | Part 4 #evolution #awakening #peace #truth #love #light https://j.mp/35Q1zYN"
May 12
OrganicMark posted a status
"COVID-19 documentary by Janet Ossebaard | Part 1-3 #evolution #awakening #peace #truth #love #light https://j.mp/2WJLXlv"
May 12
Lazy food left a comment for Valisa Monyei
May 6
Lazy food left a comment for Joe Heinrich
May 6

© 2020   Created by TheBananaGirl.   Powered by

Badges  |  Report an Issue  |  Terms of Service